Tuesday, May 22, 2007

Still tired 

Nothing new to report on the MS front. Still fatigued - BADLY - but other than that no new symptoms.



My name is Benjamin, though most people call me "Benb" (it rhymes with "Brenda"). I just stumbled (which is progressively easier to do, btw) upon your blog, and I was refreshed and grateful to read its contents. Thank you.

Utterly without expectation, I hope that you can lend me something approaching input in the service of advice.

I was diagnosed with MS about 5 years back. I'm a 29-y.o. male, and they've backdated my symptoms to when I was about 10 or so. My MRI says that I'm dissolving, but I feel pretty good. Nobody gets it. The doctors, et.al., are scratching their heads vigorously enough to merit checking for lice.

I think that I've got PRMS (though nobody really knows, which is unsurprising), and I've been doing quite well lately despite having refused any meds for 4 years. I've seen a neurologist who's supposed to be really good and she has more-or-less demanded that I start taking Rebif. I also have Narcolepsy and depression, but I work full-time, am very happily married (as well as a brand-new father!), and credit all of my wellness to the joy and kindness and beauty that surrounds me.

I ask you, in full candor: is Rebif gonna screw me up? Has it screwed you up? Can you tell me what to expect, however vaguely?

I absolutely understand if you think that I'm out of bounds for sending this note. I apologize for any offense that I might cause. Thank you, and thank you again for your blog. My e-mail is mollyandbenb@gmail.com

Best to you & yours,
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